A special thank you goes to Gary Schmidt for writing today’s post.  Gary has graciously provided his insights and planning in regards to running with type 1 diabetes.  For me, this post was very helpful.  It would be my hope that others are inspired or at least learn a few tricks for running with diabetes.  If you are interested in providing a guest post, please contact me for more information.

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I was diagnosed with Type 1 Diabetes in the fall of 2002 at the age of 28.  I wear a Minimed pump with the Minimed CGM.  Since starting to run in September of 2009, I have participated in two 10Ks, two 10 mile races, a 200 mile relay with 11 other Type 1 Diabetics, the GO! St. Louis Half Marathon and will run the Chicago Marathon later this year.  I am not a doctor and don’t have a medical background, but I like to share my experiences to help and inspire others with T1.
Tony asked me to write about my experiences with the before, during and after care that goes with extraneous physical activity, like running with T1 diabetes.  What follows is what I *try* to do every time I run.  I am far from perfect, but I have a good plan.  Most days everything will go just fine , but others… well, let’s just say every day is a learning experience.  ;-)

Preparation
Preparation and planning is the key to a good run.  Having T1, I can’t simply go out for a run at anytime.  I need to be aware of what I have eaten and how much insulin I have on board (IOB).  An hour before a run I will set my basal down to 10% of the normal level and depending on the distance I’m planning to run, I will leave it at 10% for another 30 minutes to an hour.  I like to start my runs with my BG around 120-150 and trending upwards.  To do this, I’ll eat 15-20 grams of carbs about 15 minutes before heading out.  I’ve found that eating right before starting has little or no affect on my BG, so 15 minutes seems to be the right length of time for me.  A lot of other Type 1 Diabetic runners that I know prefer to start with fairly high BG levels.  I perform much better with a lower BG level, so I like to be in the normal range.  If I am high before my run (220+) , I will do a correction that is equal to about 50% of a normal correction.  Having too much IOB is a sure way to have a nasty low while running.  If my BG is in the 200-220+ range, I would skip the 15-20 grams of carbs before the run and naturally let my BG levels come down.

Mizuno-M-Creation-9-80062
While Running
During runs I will eat 25 grams of carbs approximating every 30 minutes.  I prefer GU Energy Gels, because they are easy to carry and easy swallow while running.  I NEVER, repeat NEVER, go out for a run without at least 2 GUs.  They literally keep me going and out of trouble.  I’ll have a GU after my first 2 miles and if my BG is holding steady, as a result of BG testing or keeping an eye on my CGM, I will delay the second and subsequent GUs as long as I can.  I like to keep my BG numbers between 120 and 150 during my runs.  My CGM really helps me with this, but as soon as I see it start to trend down I will eat a GU.  Since the CGM has a bit of a delay compared to a BG meter, a low can occur faster than the CGM will react to it, so keeping a close eye on the graph is critical.
In case of emergencies I wear a wrist Road ID with my contact information and the fact that I have T1.  I also try to carry a cell phone.  But the main thing is staying out of trouble in the first place.  This can be done with proper preparation and just being smart about the situation.
If you have a the luxury of running with a friend, make sure they know what to do in the case of emergency.  I have a friend that I run the majority of my long runs with.  We talk a lot about T1 and he knows what to do in case of an emergency.

After Running
After running I have two scenarios to deal with.  The first is going high soon after finishing.  Right after a run, my body is low on insulin and potentially high on carbs.  In some cases, I have had my basal set at 10% of my normal level for nearly 2 hours while also eating 50 – 75 grams of carbs.  My practice is to bolus the amount of basal I have missed during my run.  Typically, this would be about 2 units for an hour long run.  I also try to eat at least 30 grams of carbs afterwards to help my body recover more quickly.  I will simply bolus the normal amount to cover these carbs.  The second issue is going low later in the day.  About 5 hours after a run, I will set my basal down to 50% of the normal level for 3 hours and also try to remember to eat a carb/protein snack to prevent late afternoon lows.

Running a marathon has been a life-long goal of mine and I’m not going to let diabetes stand in my way.  Sure, there are a lot of challenges that I have to deal with to be safe, but in the long run better overall health and improved control is worth it.  So, get out there, have fun and enjoy life to its fullest!

16 Comments

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Rachel Said,
April 22nd, 2009 @9:47 am  

Wow, really great post. Lots of very good information. This is a great starting point for people with T1 who want to run. As you said, this works for you, other people could start with that and adjust as needed to fit their needs.

You mention that you have the CGM. How difficult would it be if you didn’t have that? Have you ever run a marathon without it? How different was it?

Again, very nice post. Thank you for sharing. :)

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Scott K. Johnson Said,
April 22nd, 2009 @9:47 am  

Thanks Gary and Tony, this was good information.

Your preferences to start the race in that 120-150 range makes perfect sense to me. When I play basketball, the sweetspot for me is right near that 150. My performance is so much better than if is is above 200 or I’m fighting lows.

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Gary Said,
April 22nd, 2009 @10:11 am  

Thanks Rachel.

I have only had my CGM for a few months, so I’ve actually been running longer without it. For me it’s a great tool, but it doesn’t completely replace normal testing. Without a CGM, you would want to have a BG meter with you on longer runs and stop and check every so often to see how you are trending. I have a few posts on my blog about how I carry my meter.

My first 10 mile race was without and CGM. During my second 10 mile race, my CGM stopped working. Doh! So, I would say that it’s not necessarily easier with a CGM, but it is certainly a great tool… when it’s working properly. ;-)

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Michelle Said,
April 22nd, 2009 @11:56 am  

I found this intresting as I just got my pump about a month ago. I’m going to the gym for the second time today. The first time I set my basal to 50% for four hours. Did 10 minutes on the treadmill and then worked out on all the leg machines doing two sets of 12. After exercising my blood sugar was 65. I work out with my husband but hope to get healthy enough to even workout without him. I’m worried about lows though. Today I’m going to pack a juice box and a fiber one bar and hope that will treat any lows I have. I’m also going to eat before driving to the gym. I”m really out of shape and want to develop good habits.

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Greg Said,
April 23rd, 2009 @11:41 am  

This was a good explanation of your routine, thanks. I enjoy reading about others’ experiences with Type 1, but I sometimes wonder if I’m the only Type 1 who isn’t on a pump. It seems like every blog or message board I read everyone is on a pump.

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Tony Said,
April 23rd, 2009 @12:58 pm  

Gary – thanks for jumping in with the questions.

Michelle – Congrats on the new pump. I’d love to know which one you went with and why – do i hear another guest post? It’s probably good to workout with a partner who knows your condition and the risks. When I physically went to the gym I always carried a granola or protein bar or juice for a correction. I will tell you that after working out in general, my body becomes more sensitive to insulin and requires less. That in addition to getting fit and being healthy is a good thing.

Greg – Let me assure you that you’re not alone. I think there are a lot of positives to going on a pump that people like to talk about when they invest potentially thousands of dollars in a pump. I kind of feel the same way about CGMs (continuous glucose monitoring systems) which I do not own.

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Michelle Said,
April 23rd, 2009 @4:19 pm  

To answer I went with the cosmo pump which unfortunatly has been discontiued as of 3/25 this year. I don’t know why they are doing this, but they are going to still support the pump for it’s waranty period. I liked the features of this pump. Especially they hypo manager that tells me exactly how many carbs I need to get back on track. No more over treating. It’s water proof so I can go swimming with it. I can program multiple basal rates and temporary rates. I like to joke that’s it’s my bionic pancreas. I am trying to get pregnant and before the pump my A1C was 9.8, now it’s 7.8 just before going on the pump. I need to dump some weight and I think that numbers will drop more. My dad had diabeties and was dead at 51 of heart disease. I want to be healthier than he ever was. So that means taking more responsibility and working out ect.

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james Said,
April 25th, 2009 @10:04 pm  

this is such a great article, thanks for your insights and detail. I’ve only been on the pump for 5 months, and it’s changed my life. 22 years against, 5 months for…(lol)

Keep up the great blog, and stop by if you have a minute.

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Renée McNulty Said,
February 25th, 2010 @2:30 am  

Thanks for the great post. Don’t know why I didn’t look at these blog sites earlier. I’m preparing to do the Tokyo Marathon on Sunday. Just did my last training run and tested for the first time while running! I promised my husband and doctor that I will test twice during the run. I am a SLOW runner and my goal is to finish, so I am looking at probably over 5 hrs of running! I plan to set up a basal setting just for marathon day, probably starting at 30% about an hour before the start and going back to my usual (exercise day) rate after 4 hrs of running. Hopefully that will prevent the post-ex high, but I will have to test at 5 hrs if I have much further to go. I always have a lower basal rate for exercise days +24hrs. If I go over 24h without exercise, my rate has to go back up. How do you runners carry everything? Pump, meter, strips, lancer, cell phone, and enough gels/bars to get me through! Someone wanted to know if I was going to take a camera!!

mygif
February 25th, 2010 @9:33 am  

What do I use to hold my stuff while running?
At Sports Authority, Claifornia, I purchased a waist band that has an insulated bottle holder on one side and a zippered pouch (big enough to hold a small Bg meter) in the middle with an adjustable plastic snap clip. It’s the best! Good luck! AR.

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Gary Said,
February 25th, 2010 @9:48 am  

Renee,

Good luck on your marathon! Take it easy and have fun!

First off I would encourage you to test more during the race. I tested about every 5 miles during my marathon and found that was a good distance between tests. After each test, I could make decisions on what to do (correction, eat GU, drink gatorade at the next stop, etc).

As far as carrying supplies, you can’t beat a SpiBelt. You can read about how I set mine up here – http://runningwitht1.wordpress.com/2009/09/14/spibelt-diabelt/

During my marathon I was able to carry 4-5 GUs and my UltraMini meter in the pouch. I also taped an extra, emergency, GU to the belt.

Good luck!

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Gary Said,
February 25th, 2010 @9:53 am  

I thought I’d share a blog post I wrote last year during my marathon training. It describes, in detail, how I handled a 20 mile run during training.

http://runningwitht1.wordpress.com/2009/09/21/chicago-marathon-training-week-13/

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roger (sydney) Said,
March 20th, 2010 @9:23 am  

good read – thanks for that. The more I read about CGMS the more I’m keen to try one to at least get a sense of situational trends: sleeping, running, recovery. It’s just that maintaining the peripherals is so expensive.
I’ve heard advice from a few diabetic distance runners and what I do if running for more than 2 hours is disconnect my pump about 2 to 3 hours beforehand and take a small dose of Levemir (basal), like about 2-3 units. Then take in about 20-40g of carb in the 20 min before heading out and try to average about a gel every 9km or so after that, with sports drinks from stations at races or carrying in a Nathan vest if trail running or training alone. Spibelt also make a pretty handy zip-up arm band that can handle 5 gels but also fits a glucose meter, strips, finger-stabber and insulin pen. Really handy on ultras, because you can pretty much forget about it but still have all you need to self-monitor, and also in case an injury stops your run and sugars go way up as you have to either sit still or limp a long way home.
The tricky thing without monitoring is when you’re sweaty from running and it’s either a hot or windy day and you’re seriously unable to sort out which sensations are your skin and sweat reacting to your environment and which are an oncoming hypo. Definitely a juggling act, but it beats lawn bowls, eh?
:)

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Marsha Haynes Said,
December 22nd, 2010 @5:34 am  

I’m glad I found your post. I was diagnosed T1 in 1992 at 23 yrs. old. I have always been a competitive swimmer. I usually eat some kind of protein snack before swimming, but even swimming at that intensity, I usually don’t suffer lows during a swim practice (they usually hit several hours afterward.) I recently completed my first sprint triathalon (1k swim, 30k bike, 5k run). I did not have my CGM yet, so completed it by testing at the transitions and judging based on how I felt. I had gatorade on the bike and gels with me on the run (which I didn’t need). Since this race, I have made a commitment to running more. I really struggle with lows during runs, for some reason. I drop an average of 70 points on a short run (5k), so try to start at about 150-175. Any higher than that and I feel drained and unable to run. Any lower and I know I will face trouble before I’m done. I hope to do my first half-marathon in the Spring and my first marathon Jan. 2012 (Disney World). I have been really nervous about increasing my runs, but with the information you have shared (and my new CGM), I feel that I am prepared to tackle it! Thank you!

mygif
January 8th, 2012 @1:44 am  

Hi Tony – I think this must be the post that you referenced to me about running during the podcast interview. Fascinating read. I’m about to go off for a run myself in half an hour, so very useful to see how other’s manage their diabetes for running. Thanks Tony and Gary!

Unfortunately, while it is summer here in New Zealand, it has been very stormy today, so won’t be the most comfortable run. BUT consistency is the key when it comes to exercising with diabetes.

Brendon

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